Resources for AERD Patients

Additional Resources

COVID-19 Guidance for AERD Patients

Samter's Society Facebook Support Group

There are over 1,000 AERD patients in our support group on Facebook. Having AERD can be very isolating and it can be helpful to connect with other patients. Join our patient community to share your experiences with the disease and learn what has been helpful for others. 

Brigham & Women's AERD Patient Registry

All AERD patients are encouraged to join the AERD patient registry maintained by Brigham & Women's AERD Center. Information from the registry is being used to learn more about AERD, generate research ideas, and hopefully develop better treatment options. This is an online survey that takes about 20 minutes to complete. If you live outside the United States, you may need to leave the postal code blank to complete the survey. 

Printable List of Drugs to Avoid

This is a list of the most common NSAID medications that cause AERD reactions. If you are not desensitized to aspirin, it is strongly recommended to print several copies of this list. Carry a copy of the list with you in the event of an emergency. Give copies of it to all of your medical providers. This list is not complete. You can read more about which NSAIDs can cause reactions on this page

Guide for AERD Patients

This guide for AERD patients was written by Dr. Andrew White of Scripps Clinic. Dr. White manages the Aspirin Exacerbated Respiratory Disease Clinic at Scripps and is one of the foremost experts on AERD in the world.

Printable Guide for Physicians

This guide for physicians treating AERD patients was written by Dr. Andrew White of Scripps Clinic and Dr. Tanya Laidlaw of the Brigham & Women's AERD Center. Patients are encouraged to print copies of this guide and provide one to every doctor who treats you.

Printable AERD Fact Sheet

This AERD Fact Sheet is a resource developed by Allergy & Asthma Network. Print a copy and provide it to your doctors. 

Elective Surgery Protocols

If you are desensitized to aspirin and need to undergo elective surgery, these protocols to maintain desensitization may be helpful. Print them and discuss them with your surgeon. 

Scripps Elective Surgery Protocol

Brigham & Women's Elective Surgery Protocol

Comprehensive Physician Packet

This comprehensive packet contains numerous documents designed to provide an overview of AERD and AERD treatments. If your doctor does not seem to know much about AERD, consider printing the packet and providing them with a copy. 

Additional Resources

Letter to Health Care Providers Regarding Aspirin Desensitization

AERD Medication Guide

AERD Wallet Card

Educational Videos

Join the Facebook Samter's Society Support Group to connect with other patients!