Resources for AERD Patients
There are over 1,000 AERD patients in our support group on Facebook. Having AERD can be very isolating and it can be helpful to connect with other patients. Join our patient community to share your experiences with the disease and learn what has been helpful for others.
All AERD patients are encouraged to join the AERD patient registry maintained by Brigham & Women's AERD Center. Information from the registry is being used to learn more about AERD, generate research ideas, and hopefully develop better treatment options. This is an online survey that takes about 20 minutes to complete. If you live outside the United States, you may need to leave the postal code blank to complete the survey.
This is a list of the most common NSAID medications that cause AERD reactions. If you are not desensitized to aspirin, it is strongly recommended to print several copies of this list. Carry a copy of the list with you in the event of an emergency. Give copies of it to all of your medical providers. This list is not complete. You can read more about which NSAIDs can cause reactions on this page.
This guide for AERD patients was written by Dr. Andrew White of Scripps Clinic. Dr. White manages the Aspirin Exacerbated Respiratory Disease Clinic at Scripps and is one of the foremost experts on AERD in the world.
This guide for physicians treating AERD patients was written by Dr. Andrew White of Scripps Clinic and Dr. Tanya Laidlaw of the Brigham & Women's AERD Center. Patients are encouraged to print copies of this guide and provide one to every doctor who treats you.
This AERD Fact Sheet is a resource developed by Allergy & Asthma Network. Print a copy and provide it to your doctors.
Elective Surgery Protocols
If you are desensitized to aspirin and need to undergo elective surgery, these protocols to maintain desensitization may be helpful. Print them and discuss them with your surgeon.
This comprehensive packet contains numerous documents designed to provide an overview of AERD and AERD treatments. If your doctor does not seem to know much about AERD, consider printing the packet and providing them with a copy.
AERD Media Articles
Aspirin Both Triggers And Treats An Often-Missed Disease - 2016 NPR Article
Her doctor said she had the flu. It took years to find the real, and strange, illness - 2018 Washington Post Article
'Allergic’ to Alcohol? There May Be a Way to Treat Your Symptoms - 2018 Healthline Article
Sudbury Woman Raising Awareness of Disease Affecting People with Asthma - 2018 CBC Article
A Runner Suddenly Developed Asthma. It Was Stranger Than It Seemed - 2019 NY Times Magazine Article
Other Helpful Links
Join the Facebook Samter's Society Support Group to connect with other patients!