Resources for AERD Patients
There are over 1,000 AERD patients in our support group on Facebook. Having AERD can be very isolating and it can be helpful to connect with other patients. Join our patient community to share your experiences with the disease and learn what has been helpful for others.
All AERD patients are encouraged to join the AERD patient registry maintained by Brigham & Women's AERD Center. Information from the registry is being used to learn more about AERD, generate research ideas, and hopefully develop better treatment options. This is an online survey that takes about 20 minutes to complete. If you live outside the United States, you may need to leave the postal code blank to complete the survey.
Elective Surgery Protocols
If you are desensitized to aspirin and need to undergo elective surgery, these protocols to maintain desensitization may be helpful. Print them and discuss them with your surgeon.
AERD Media Articles
Aspirin Both Triggers And Treats An Often-Missed Disease - 2016 NPR Article
Her doctor said she had the flu. It took years to find the real, and strange, illness - 2018 Washington Post Article
'Allergic’ to Alcohol? There May Be a Way to Treat Your Symptoms - 2018 Healthline Article
Sudbury Woman Raising Awareness of Disease Affecting People with Asthma - 2018 CBC Article
A Runner Suddenly Developed Asthma. It Was Stranger Than It Seemed - 2019 NY Times Magazine Article
Other Helpful Links
Join the Facebook Samter's Society Support Group to connect with other patients!